Hi little guy. I spoke to mummy today. You've failed another hearing test and are being referred to a specialist. I hope everything's going to be okay. You're such a little fighter. I love you so much.

I've not written on this for a very long time, I will catch up soon I promise. I became godmother today to a very special little man, Harley Chase. I’m so proud of you and mummy and how far you’ve come, although your first few months were scary for everyone who loved you, you’ve amazed everyone with how far you’ve come and how incredible you really are. I’m so proud to be your godmother and I can’t wait to watch you grow up into a very special boy. I feel so honored to be part of your life , I hope you realise how very loved you are by everyone around you.

Today is the day that I got a panicked phonecall saying Georgia had gone into labor, the baby was on his way, far too early. Today is the day I honestly thought my friends baby was going to die. Baby Harley was born weighing 1lb 4oz, his chances of survival were low. I remember waiting for news after every operation. I remember printing a picture of him off and keeping it in my purse, it’s still there. I remember the first time I went to see him in hospital, he was three months old, and tiny. I remember standing and watching his tiny chest rise and fall, I studied his fingers, his toes, his tiny features, he was perfect. The next time I saw him was 3 months later, he’d been taken off a ventilator, and was in a hospital closer to home, I could cuddle him, I visited him three days consecutively. I remember crying when he was allowed home, with his mummy, where he belonged. I got the train home the next day so I could see him. And now that little baby is one, it’s gone so quick, and I am so unbelievably proud to be his godmother. His strength and determination is incredible, he’s had a rough start in life, but is now so smiley and happy. And there are no words to describe his mummy, seriously. She’s amazing. And I’m so proud that she’s my friend. Happy Birthday Harley-Chase. I love you to the moon and back.

Harley, it's been a while since I wrote on here. And oh my, you are doing amazing. You're at home now, with mummy. In a few weeks you're going to be christened, im going to be your godmother. I'm so so so proud of you little fighter. I love you so much.

Harley's first Christmas, dressed as a little elf. Mummy and Nanny got a cuddle, yay. Doing so well at the minute, onto full feeds tomorrow and broviac line can come out soon, then it's just a case of waiting until he's big and strong enough to come home. I cannot wait for a cuddle.

Merry Christmas Harley Chase.

You're spending this one in hospital, next year you wont, you'll be at home with mummy. I lit a candle for you at midnight mass and gave mummy your presents. Merry Christmas, my little fighter.

Little Harley's not doing well, keeps stopping breathing whilst still on his ventilator, fingers, toes and everything crossed please. Keep fighting baby, we love you.