Little Fighter

27th October - Harley is doing FABULOUS :) He's still on CPAP not ventilator but is also allowed up to 60 mins twice daily off the CPAP - this means its all disconnected and he just has a nasal canula which are two tiny tubes up his nose to give him small amount of oxygen, he has to breathe all by himself and he's doing really well on this :) But best of all when he's on the nasal canula it means that he has nothing covering his face and has no hat on. He has now also been promoted to wearing a babygrow - he is THE most ADORABLE little soldier :)) They've said that he appears to 'have turned a corner' so fingers crossed no more backward steps. When he is on CPAP he needs approx 40% or less oxygen which is brilliant news :) New pictures of Harley, without his little hat, look at that hair, and his chubby cheeks!